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Nurse Kelley Sez

Nurse Kelley Sez: If you die, how will we know?

When I published the first version of this diary in 2010 it seemed to resonate with a lot of people. It has been, by far, the one post of mine most often requested for republication. Something happened last night that made me realize it’s time to post it again: a woman I love, a woman I’ve never met, went silent last Sunday. I first met Linda Kay Thurman on another blog, writing as In her own Voice, and we eventually became facebook friends. Over time her blogging was replaced by grandchildren, but Linda kept her online friends close and engaged and delighted with her stories and photos and daily thoughts.

Sunday, Linda’s updates stopped abruptly. She had somewhere to go, probably just an errand or dinner out, and two blocks from her home a drunk driver ran a stop sign at high speed and ended her beautiful life instantly. If her daughters hadn’t had her facebook sign-in information – and used it last night – many of Linda’s hundreds of friends might never know why she seemed to vanish in thin air.

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Nurse Kelley Sez: If You Die, How Will We Know?

Dying is a matter of “when”, not “if”. Pretty much everyone knows what they should do to make their final arrangements, and doing so is not just for the old and infirm. Even you college students could get hit by a bus and die tomorrow. If you’ve got more than a few possessions or think you might even consider having children someday or don’t want your brothers to fight over your DVD collection, you need a will. If you’ve got a complicated family of in-laws, outlaws, stepkids and exes, you REALLY need a will. If you are the parent or guardian of a disabled person you need to make legal arrangements and trusts NOW. If you are a member of the GLBT community and don’t yet have the same rights as everyone else, you MUST have a will.

If you have strong feelings about organ donation (you do, don’t you?) don’t just sign a donor card. Your family can override your wishes when you die. Your Durable Power of Attorney for Healthcare, your Living Will, and your Power of Attorney should be executed, discussed with your next of kin and safely stored where they can retrieve them when needed. Don’t forget to choose a guardian for your kids and make arrangements for your pets.

Today’s topic is more about notifications than arrangements. It was simple enough when my parents died; we notified family members and close friends, then got in touch with the company Daddy worked for his entire life. Both my parents graduated from Rice University and were active in the alumni association, so we called them and asked them to get the word out. They’d volunteered for a variety of organizations and causes, and they’d been members of the same church for eons. We knew which neighbors they were friends with and we called them. Their address books provided the names of friends we weren’t aware of, and obituaries in the local paper were seen by the one or two friends we’d missed.

My, how times have changed! Address books have been replaced with password protected computers and handheld devices. If your survivors are lucky enough to know (or guess) your passwords, what then? Will they know which social networking site(s) you frequent … and how to get into them? Do they know if you’re in secret facebook groups, and how to contact someone in the group?

What about the financial sites you use? I’ve got a Power of Attorney and my son knows where it is, but he could begin managing my affairs immediately if he knew how to access my accounts online. Should I give him that information now? Just in case? If not, what do I do with the myriad web addresses and sign-in names and passwords currently clogging my brain?

More to the point today, if you die and you’re still an active member of this crazy place, how will we know?

At the end of 2009 I saw a posting on facebook that resonated with me. I don’t remember who posted it, so this is as close as I can come to the original:

My New Year’s resolution is to stop referring to you guys as my internet friends. You’re friends, period.

Do Nurse Kelley a favor, please. Tell someone you love and trust how to access your account here, or how to get in touch with a mutual friend here. Don’t just disappear:

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Republished by request

Nurse Kelley Sez: The end of an era for me

(This is a cross-post of my final diary as moderator of KosAbility)

I wrote the kick-off diary for this group three years ago next month, and I have been the Sunday moderator almost every week since.  

Many of us old-timers who considered KosAbility to be a labor of  love have moved on. CJ (ulookarmless) passed away. Father John-Mark (jgilhousen) has a new ministry. Scottie Thomaston (formerly indiemcemopants) has a full-time job. Homogenius has a job and a busy life. Peter (plf515) is still an occasional contributor and remains my rock, but his business is growing. Me? I’m tired. Three years is a long time to give up every Sunday afternoon.

We’ve done great work with this group. Before KosAbility, you didn’t see people getting donuts for comments like “retard” or “take your meds”. We earned a deserved place on the Daily Kos masthead, one of only five groups named as “Featured Groups”.  Almost 1200 diaries bear the KosAbility tag, and most of our scheduled diaries have been on the site’s Recommended List. A lot to be proud of; a great tradition for someone to carry forward.

That someone is my friend postmodernista. I was about to post a diary last week looking for a volunteer when Jill called me out of the blue and, when I told her what I was doing, she offered to take my place. It was as if the universe were handing me a gift! We’re both here today, me to say goodbye and Jill to say hello to those who don’t know her. I’ll let her have the space below the squiggle to introduce herself.

I want to thank everyone in the community for helping make KosAbility such a success – our writers, our commenters, our moderators, and our board. You guys are the best of the best. ♥

Nurse Kelley Sez: Should I share this here?

Many of you know that I moderate a blog for the disabled and their families/loved ones on another site. I can’t cross-post most of them here because most are written by guest writers, but if there is much interest I can provide a link each Sunday with a brief description of the topic. Today’s topic, for example, is post-polio syndrome.

Weigh in, Moosketeers! What say you?